all about tanner boo: i wish time would stand still

Monday, March 23, 2009

i wish time would stand still

It's almost time for Taylor to leave us. Every night I go to bed I think about how it is one less day we have with him. I've been trying to make the most of every day. We have been saying how much we love each other more and we are not fighting over stupid things like we use to. We are really trying to enjoy each other as much as we can. We are super bummed about missing each others 21st birthday!! My friends are taking me out which I am pretty excited about : ) I'm also very bummed about not having Taylor to cuddle in bed. I can hardly go to sleep with out touch his feet, his hair, or completely cuddling him.

I have been interested in bringing awareness to Alpha 1. I've found some groups on facebook and a couple of blogs. I want to find out if there is a walk or foundation we could get involved with. I don't know if it's just not common or if people just do not know that they have it. I am also involved with a awareness ribbon photo book with some fellow moms. Alpha 1 is one of the awareness ribbons so I am hoping it will shed some light on this disease.

So, I have been thinking a lot about what I want to do with my future. Deep down I just want to be a mom, I just want to have babies and raise them but with Tanner issues we are not sure about having more of our own. I would love to adopt of even foster as many children as possible but for obvious reason now is not the time for that. Soooo I have been thinking about going to school online for now and then maybe working tomorrow studying marine biology or something along those lines. I would love to work with dolphins or whales.

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The Littlest Heroes Project is a non-profit based organization founded in January 2008 by Felicia Reinhard, made up of professional photographers nationwide that provide free photo sessions to our nations Littlest Heroes. Through the power of photography we are giving back and taking a stand for these children who sometimes feel forgotten because of their illnesses. We are here to let them know that they are heroes to many, and to share their inspirational stories and photos with the world. If you have a child, or know a child, who suffers from any type of serious illness or life altering disability we are here to help. The Littlest Heroes Project provides you with a complimentary photo shoot for your hero and family. Please read the information on this site and be sure to contact us so we can help pair you up with a photographer from your area. The whole family … Super Sibs and the Brave Parents are welcome to participate in the session as well!

I'm Haley. I'm a wife, mother, and photographer. I have a loving family and wonderful friends. I have a little boy who lights up my world & I am very lucky to have an amazing husband who will do anything to make me happy. I live in San Antonio, Texas. Photography is my passion! I eat sleep and breath photography. My camera & Mac are my most important possessions. I've read the Twilight Saga 3 times. I have a strong opinion of movies and music. I've been told I am stubborn and spoiled. I am learning to walk in heals. I am obsessed with shopping for my son. I don't cook or clean. I have a border collie named Dexter. I want to adopt. I am 21.

My son Tanner was diagnosed with Alpha 1 a little over a year ago. When he was 9 months we went in for his well baby and the doctor noticed his liver was enlarged and centered. He was in the hospital for about a week, he had several needles stuck and poked into him, and a handful of CT scans. Right before his 1st birthday he was diagnosed with Alpha 1, which they figured out through blood work. After that we scheduled a biopsy of his liver to confirm. He defiantly try to get out of getting the biopsy by getting sick over and over again! After rescheduling 3 times he finally had it done and the biopsy confirmed he has Alpha 1. It was hard to see my child go through this but I'd say Taylor and I did a pretty good job at staying strong. As far as dealing with Alpha 1 he goes in for blood work every 6 months and so far so good!